First of all, an apology for not being around these last two weeks. At the beginning of February, I burnt out for a plethora of reasons but one of the biggest ones is being the oldest daughter of an oldest daughter, which means I carry responsibilities and sadness in heavy measures. On the 2nd of February, I came back to India after 4 years and in the last two weeks, I’ve visited 4 cities, caught 4 planes, 3 train journeys, done 2 major events, a revisiting of some serious childhood trauma but the most important thing I did was see my grandparents after four long years. Homecoming, I think, for most of us is a deeply complex thing – especially when you know that it may be the last time you see someone you love beyond comprehension or words.
For me it is my grandparents. The gift of being the eldest child is if you have grandparents, you get to know them longest. The tragedy of being the oldest child is you have to watch them go after all that time full of love. For artists, sometimes it is even more than that. You see, for me, my grandfather is my storyteller’s voice. The person who gave me my first stories, who made me fall in love with poetry and story. He is the roots of this tree I have become, the one who handed me Mahmoud Darwish’s work at 15 and told me “let this change you”. His mind was sharp as a tack. I don’t remember a dull moment with him all through my twenties and if you asked me for my heroes, I would name him in a heartbeat. This was a man that was still weightlifting at 85 despite his arthritis.
I am telling you all this because this is everything dementia took from him. His ability to share stories. His ability to tell jokes. His capacity to be present in the same room as us. His laugh, infectious and full. I saw this clearly when I returned, hugged him and he just barely registered it was me.
The thing with anticipatory grief is, the knowledge of what is coming even when they are still with you. You watch them fading right before your eyes, you know you won’t have long and there is very little you can do. You think about what you will do after they are gone and then feel guilty for even thinking about an after. You try to tell them everything you wish you had said when they were still completely there with you. You recall their memories for them because they can no longer remember them. You remind them who you are and who they are several times a day, of the love you have shared. Sometimes, you tell them the stories they told you as a child. You watch pieces of them go day by day and wish you could grab them and bring them back. One day, they will forget your face. But they may remember you as a kind voice and gentle hands which held theirs and told them how much they are loved. And perhaps that is all healing can look like when you are waiting for the inevitable. No one promised us mortality was fair. But we were promised love and to heal, truly heal, holding that love close has to be enough.
I promised my grandfather I would be back to see him, knowing fully well that the next time he sees me, he may not know who I am. But I will tell him the stories he told me when I was a little girl. And I will give him the memories of our walks and joyous meals together. And I will hold his hands in mine and remind him how much he is loved. And he may not know me. But perhaps his own storytellers voice will speak back to him when he is lost. Perhaps he will find comfort inside the words of courage he gave to me when I was afraid. If nothing else, I hope I can give him back some of the hope he gave me when I needed it the most. I hope that even if every memory fades, the warmth of how much he is loved holds him close till the very end.
Hug the people you love close. Tell them how much they mean to you. Have more meals together. Laugh harder together. Don’t be afraid to cry in front of each other. Remember we were never promised forever which means you must love as much as you can now.
With verse and warmth,
Nikita
Oh Nikita....Thank you for sharing him with us. I read this post at least 3 times, and vivid images of a hand with Mahmoud Darwish's poetry flashed in front of me, an image of a young Nikita gently taking it and reading it under a lantern... or the lamp of anticipatory joy from her own heart inundated my imagination. I wonder what happens to the human physiology as memories fade, and our souls can't express through this palpable edifice composed of flesh and blood and anomalous molecules and cells that we reside in..... My axons and dendrons sent so many impulses up and down my breath, and I could feel tears trickling down my face.
I often think of my relationship with "home", with the land where my ancestors planted their roots. I was an eldest child. The parents that I owe my existence to resented me and tried to take my breath away and send me back to the expansive space composed of hydrogen and carbon and elements that the stars are made of. But destiny had other plans. My maternal grandmother found me delirious, with a fever, sexually abused and shaking when I was 5 years old. I had taken solace behind a tiny hut that smelled of cardamom. Even if my mother didn't want me, her dupatta smelled of "elaichi".... How I craved my mother's touch. But my nani scooped me up and made me Bajri ki roti. Her favourite raag was Tilakkamod, and she sang me the most beautiful tunes. She fed me.. And I slept in her lap for days. Her name was Tara.... meaning stars!
That deep care that she gave me for those 4 days lit up a lamp in my heart. That no matter where I go, her love would save me and soothe me. And even if she wasn't ever with me in the flesh, her healing love stays with me, tucked in a sanctimonious alcove in the shrines of my soul and being. In 2011, I found out she was visiting a relative in the United States. I was in a homeless shelter, but I took 5 buses and 4 days and I found her. She had Alzheimers, and she couldn't remember me. I started singing raag Tilakkamod and I saw her eyes light up. I slept in her lap for days and days. We ate Bajri Ki Roti. I bathed her. Brushed her hair and showed her the stars and told her it was her shine that kept the sky ablaze.
2 months later she left this planet. And I still cry...But I am so grateful I got a few days with my shiny star. My Tara Nani.
I'm sending you so so much love Nikita. Hugging your heart from afar...Thank you for taking me to a space that means so much to me, my Nani's memory. I hope you get the rest and rejuvenation. I hope healing embraces you, I hope your heart feels held and loved.
dementia is so incredible hard to witness. just lost my grandfather to alzheimer’s last year and it’s awful to see the minds of people deteriorate beyond their control. sending love 🧡